World Alzheimer’s Month (september 2019) is a time to recognise the impact of dementia but also to act to support those affected globally. A coordinated global voice on dementia ensures that this action is taken to advance awareness, care and science all year round.
By far the loveliest person with alzheimer to care for of was ‘ours’, my sister and mine. Our aunt, actually our second mother. We loved her dearly. She would be delighted that her picture is on your screen now.
She passed away in July 2017 and we wouldn’t pay her respect in the right way remembering her only as a person with alzheimer. She was so much more. A truly great and loving person with a beautiful rich life.
In her career in health care and her last years with Alzheimer (around 5-10 years) she would fully adhere tot the message of World Alzheimer Month:
– For people living with dementia: Although there is no cure at present, a diagnosis provides an opportunity to discuss dementia and plan for the future to maximise your quality of life.
– For carers: If you are a carer, remember to take care of yourself.
Our experience as a carer
As the campaign states, people living with dementia and their carers have an equal right to respect and inclusion, and to diagnosis, quality care and treatment.
Our experience as a carer of a beloved one with alzheimer, next to your (fulltime) job is that your mindset compares to running a marathon after a marathon. Fatigue rises and increases and you need complete focus. It took us about a year to recover and reenergize of everything done during our aunts illness. Looking after her, all her lost ‘things’, the moments of distress, her docter and hospital visits, the confusion that goes with this illness, moving, arranging quality time for her and finding quality time for us together. Our family and children helped out on that.
Something energizing on World Alzheimer Day
On World Alzheimer Day we hope that carers will be able to do something really sunny, energizing, relaxing, most enjoyable for yourself. To reenergize on the short run, to be able to support those affected on the long run.
World Alzheimer Report 2019
We look forward to the World Alzheimer Report 2019, with valuable insights and information.
Let’s talk about dementia
If you want to drop me a line (in reply to this blog or as a private message) on your experiences please do.
Let’s talk about dementia. #WorldAlzMonth Sandra Kruijt
- Campaignsite World Alzheimer’s Month
- Posters in English, French, Spanish with colourful pictures of people of various nationalities, ages and gender.
- Bulletin Lets talk about alzheimer
- Toolkits in English, French and Spanish
- Alzheimer’s Disease International
For the Netherlands:
Trimbos.nl | Dementie? Vergeet de mantelzorger niet
Trimbos.nl | Ondersteuning na de diagnose dementie
Lees hier ook meer over het Namaste Familieprogramma:
Het gedrag van mensen met gevorderde dementie is vaak moeilijk te begrijpen. Waaraan hebben zij behoefte? Hebben ze pijn? Het Namaste Familieprogramma en een screeningslijst voor pijn bieden concrete handvatten om de zorg te verbeteren.